Hypermobility Spectrum Disorder (and cannabis)

[Lank72]

I've been keeping a pain diary a while to try and work out what the hell is causing my various body pains, and I actually saw an article about hypermobility the other day and I think it might be my jackpot (well, you know, jackpot in getting to an answer - regular pain and exhaustion doesn't feel like winning anything)

I haven't raised with the GP before because everything could almost be explained as a separate one-off thing and usually gets completely or a lot better within 2 weeks (strains, sprains, etc), but over the last 10 years occurrences have been more regular, with pain lasting longer and being more intense, particularly around shoulders and knees, and lower back too. And the fatigue, oh the accompanying fatigue.

I've got a couple of months diary notes now, and a list of other instances / body areas / symptoms to help me manage the NHS repeated interrogation process. Canna oil in particular, and the pain killer strains help a lot, so does ibuprofen gel to a degree

If anyone is suffering from hypermobility spectrum disorder, or thinks they might be, I'd love to hear from you!

 

[Bayo]

My daughter ticks all the boxes for this. Constant sprains and fatigue as well.

Please keep this thread updated with how you get on, especially with your GP.

Thanks for raising it.

 

[Lank72]

Cheers, will do, I should add I'm also AuDHD and it apparently co-occurs with neurodivergent disorders

I'm building up the courage to maybe start the ball rolling with the GP next week and will definitely post back here

 

[OldBloke]

I've been keeping a pain diary a while to try and work out what the hell is causing my various body pains, and I actually saw an article about hypermobility the other day and I think it might be my jackpot (well, you know, jackpot in getting to an answer - regular pain and exhaustion doesn't feel like winning anything)

I haven't raised with the GP before because everything could almost be explained as a separate one-off thing and usually gets completely or a lot better within 2 weeks (strains, sprains, etc), but over the last 10 years occurrences have been more regular, with pain lasting longer and being more intense, particularly around shoulders and knees, and lower back too. And the fatigue, oh the accompanying fatigue.

I've got a couple of months diary notes now, and a list of other instances / body areas / symptoms to help me manage the NHS repeated interrogation process. Canna oil in particualr, and the pain killer strains help a lot, so does ibuprofen gel to a degree

If anyone is suffering from hypermobility spectrum disorder I'd love to hear from you!

Connective tissue disorders, hypermobility, Ehlers-Danos Syndrome etc .. strangely enough my MCAS has kicked off some of this for me, never had the issue before. Easily sprained digits, shoulders and neck are a mess, muscles. Often reported by LC/ME/CFS patients, my fairly savvy Dr has no idea on the cause. Says patients with POTS also have it frequently, I have POTS.

Searching PubMed reveals a lot of research but no solid conclusions. Get well mate!

 

[Lank72]

Connective tissue disorders, hypermobility, Ehlers-Danos Syndrome etc .. strangely enough my MCAS has kicked off some of this for me, never had the issue before. Easily sprained digits, shoulders and neck are a mess, muscles. Often reported by LC/ME/CFS patients, my fairly savvy Dr has no idea on the cause. Says patients with POTS also have it frequently, I have POTS.

Searching PubMed reveals a lot of research but no solid conclusions. Get well mate!

I get postural hypotension (light-headed on standing due to blood pressure drop) which is apparently also a hypermobility spectrum indicator, but not sure about POTS, never tested it, but a cons. psych. I was seeing once suggested it could be likely for me based on my history.