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Intros finally hello, i am barry, human first

Barry

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🏴󠁧󠁢󠁳󠁣󠁴󠁿 Medicann
Long time cannabis enjoyer, first cause was crazy great feeling, then its was better than drinking, and kept me away from addictive substances, except nicotine, hell, I played in a punk band in my 20-30's + so I would try anything once, perhaps twice, so i have cannabis to thank for keeping me safe, that and perhaps with youth and exuberance was responsible for some of my poorer decisions as well🤷‍♀️I did not notice at the time, I was playing bass, gigging/working/partying, all hard.

Had stroke 6yrs ago, left carotid 100% occlusion, which left me with aphasia/dysphagia, Ocular ischaemia L eye, weakness and slowness, I was lucky, I could, walk all my body escaped damage, 16 jobs later + 5 years on DWP decided i did not have capacity to work. without assessment,, applied and got denied for Pip, and mandy reconsideration no go,

My right side feel off, like there are 2 halves, one feels normal the other swollen & variable pain, numbness lack of function and affects mood, sleep, atomic function, always in some pain over the last 1.5 years, feels like having had respite for a few years, now feel like stroke is happening in very very slow notion, and GP has diagnosed Central Pain Post Stroke, indication tremors, symptoms, so now, I use cannabis to kill pain, help me sleep, and make me feel better. If I did not have that, man,I dint know, basically the pc board in my brain is cracked, hard-drive corrupted and if i dont use a function, my brain will shut it down, hence all the walking

Tho I have 40 years exp with Cannabis, It was in Cape Town and names were not important, just good weed, or poor weed, and to avoid the poor stuff was the goal. So my knowledge is like a newbie ito names and strains, really I am like a kid in a candy store for the first time :ROFLMAO: and really am appreciative for this forum, and the info we gain from each other :love: & just thought would B like proper intro myself.
 
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A belated welcome @Barry and thanks for sharing this with us mate and it's comforting to hear that cannabis helping in this all with dampening down symptoms and helping you sleep .

Like yourself I've been around canna for around 40 years but never chased the latest craze strain name pre medical as I always seen it as hype with the older more established names being reliable flower.

I'd say don't give up on PIP especially if you feel your daily life is affected more than when you applied previously and I always find a letter from your GP goes a million miles when confirming what you are saying when applying for PIP and often even more so than a specialist as the GP is more involved usually and has known you over a longer period and would of seen the changes.
 
"A 'use it or lose it' situation? Thank you for sharing your narrative, being so brave, and introducing yourself so eloquently. It makes SoH™ glad you find relief through our beloved flower. Are you South African, and do you have an accent? The South African accent has been my absolute favourite right from the get-go."
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A belated welcome @Barry and thanks for sharing this with us mate and it's comforting to hear that cannabis helping in this all with dampening down symptoms and helping you sleep .

Like yourself I've been around canna for around 40 years but never chased the latest craze strain name pre medical as I always seen it as hype with the older more established names being reliable flower.

I'd say don't give up on PIP especially if you feel your daily life is affected more than when you applied previously and I always find a letter from your GP goes a million miles when confirming what you are saying when applying for PIP and often even more so than a specialist as the GP is more involved usually and has known you over a longer period and would of seen the changes.
Appeal, I did and won and its back dated to when you first made the claim.
 
Long time cannabis enjoyer, first cause was crazy great feeling, then its was better than drinking, and kept me away from addictive substances, except nicotine, hell, I played in a punk band in my 20-30's + so I would try anything once, perhaps twice, so i have cannabis to thank for keeping me safe, that and perhaps with youth and exuberance was responsible for some of my poorer decisions as well🤷‍♀️I did not notice at the time, I was playing bass, gigging/working/partying, all hard.

Had stroke 6yrs ago, left carotid 100% occlusion, which left me with aphasia/dysphagia, Ocular ischaemia L eye, weakness and slowness, I was lucky, I could, walk all my body escaped damage, 16 jobs later + 5 years on DWP decided i did not have capacity to work. without assessment,, applied and got denied for Pip, and mandy reconsideration no go,

My right side feel off, like there are 2 halves, one feels normal the other swollen & variable pain, numbness lack of function and affects mood, sleep, atomic function, always in some pain over the last 1.5 years, feels like having had respite for a few years, now feel like stroke is happening in very very slow notion, and GP has diagnosed Central Pain Post Stroke, indication tremors, symptoms, so now, I use cannabis to kill pain, help me sleep, and make me feel better. If I did not have that, man,I dint know, basically the pc board in my brain is cracked, hard-drive corrupted and if i dont use a function, my brain will shut it down, hence all the walking

Tho I have 40 years exp with Cannabis, It was in Cape Town and names were not important, just good weed, or poor weed, and to avoid the poor stuff was the goal. So my knowledge is like a newbie ito names and strains, really I am like a kid in a candy store for the first time :ROFLMAO: and really am appreciative for this forum, and the info we gain from each other :love: & just thought would B like proper intro myself.
Try here baz

https://www.fightback4justice.co.uk/
 
Provided GP letter confirming, submitted on Mandy recon, not good enough, I am naturally a positive person which dont help much with these, as I find a way instead of holding up my hands and say cant, however I will reapply, just want to gather more evidence, and have started a tedious daily diary
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"A 'use it or lose it' situation? Thank you for sharing your narrative, being so brave, and introducing yourself so eloquently. It makes SoH™ glad you find relief through our beloved flower. Are you South African, and do you have an accent? The South African accent has been my absolute favourite right from the get-go."
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Appeal, I did and won and its back dated to when you first made the claim.
English South African - yes, Afrikaans speaking Enslish accent - no :ROFLMAO:
 
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Provided GP letter confirming, submitted on Mandy recon, not good enough, I am naturally a positive person which dont help much with these, as I find a way instead of holding up my hands and say cant, however I will reapply, just want to gather more evidence, and have started a tedious daily diary
Provide DWP PIP with any/all recent specialist assessment/report/letters!
 
It would be great to see a section for help for patients losing or trying for benefits, i get dla that i fought for but got put off esa and denied pip so dla keeping me alive with script.
I will use fightback forjustice when reapplying for pip as they seem to have a high success rate and help alot get higher rate.
 
It would be great to see a section for help for patients losing or trying for benefits, i get dla that i fought for but got put off esa and denied pip so dla keeping me alive with script.
I will use fightback forjustice when reapplying for pip as they seem to have a high success rate and help alot get higher rate.
  1. Understanding their silly scoring system helps.
  2. Below is the itemised breakdown of descriptor points for all 12 PIP activities.
  3. Remember: for any single activity, you only score the highest individual descriptor that applies to you.

Daily Living Component (Activities 1–10)


1. Preparing Food
  • a. Unassisted: Can prepare and cook a simple meal unaided (0 points)
  • b. Equipment/Aids: Needs an aid or appliance (e.g., perching stool, adapted utensils) (2 points)
  • c. Microwave: Cannot use a conventional cooker, but can use a microwave (2 points)
  • d. Prompting: Needs prompting or encouragement to prepare or cook (2 points)
  • e. Supervision/Help: Needs physical assistance or supervision (4 points)
  • f. Cannot prepare: Cannot prepare and cook food at all (8 points)
2. Taking Nutrition
  • a. Unassisted: Can take nutrition unaided (0 points)
  • b. Minor assistance: Needs an aid, supervision, or physical help cutting up food (2 points)
  • c. Therapeutic source: Needs a therapeutic source (e.g., tube feeding) (2 points)
  • d. Prompting: Needs prompting to eat or drink (4 points)
  • e. Managing therapy: Needs help managing a therapeutic source (6 points)
  • f. Cannot feed self: Cannot convey food or drink to mouth; needs another person (10 points)
3. Managing Therapy or Monitoring a Health Condition
  • a. Unassisted: Manages medication, therapy, or condition unaided (0 points)
  • b. Medication help: Needs an aid, prompting, supervision, or assistance to manage medication or monitor condition (1 point)
  • c. Therapy (≤ 3.5 hrs/wk): Needs help/supervision with therapy taking up to 3.5 hours per week (2 points)
  • d. Therapy (3.5 – 7 hrs/wk): Needs help/supervision with therapy taking between 3.5 and 7 hours per week (4 points)
  • e. Therapy (7 – 14 hrs/wk): Needs help/supervision with therapy taking between 7 and 14 hours per week (6 points)
  • f. Therapy (> 14 hrs/wk): Needs help/supervision with therapy taking over 14 hours per week (8 points)
4. Washing and Bathing
  • a. Unassisted: Can wash and bathe unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., shower seat, grab rails) (2 points)
  • c. Prompting: Needs supervision or prompting (2 points)
  • d. Partial physical help: Needs help to wash hair or body below the waist (2 points)
  • e. Getting in/out: Needs help getting in or out of a bath or shower (3 points)
  • f. Torso help: Needs help to wash body between shoulders and waist (4 points)
  • g. Full assistance: Cannot wash or bathe at all; needs another person to wash entire body (8 points)
5. Managing Toilet Needs or Incontinence
  • a. Unassisted: Manages toilet needs or incontinence unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., raised toilet seat, commode) (2 points)
  • c. Prompting: Needs supervision or prompting (2 points)
  • d. Physical help: Needs assistance to manage toilet needs (4 points)
  • e. Single incontinence: Needs assistance to manage incontinence of either bladder or bowel (6 points)
  • f. Dual incontinence: Needs assistance to manage incontinence of both bladder and bowel (8 points)
6. Dressing and Undressing
  • a. Unassisted: Can dress and undress unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., button hooks, long-handled shoe horn) (2 points)
  • c. Prompting: Needs prompting/encouragement to dress, undress, or select appropriate clothes (2 points)
  • d. Lower body: Needs physical help to dress or undress lower body (2 points)
  • e. Upper body: Needs physical help to dress or undress upper body (4 points)
  • f. Cannot dress: Cannot dress or undress at all (8 points)
7. Communicating Verbally
  • a. Unassisted: Can express and understand verbal information unaided (0 points)
  • b. Communication aids: Needs an aid/appliance (e.g., hearing loop) to express or understand basic verbal information (2 points)
  • c. Complex support: Needs support to express or understand complex verbal information (4 points)
  • d. Basic support: Needs support to express or understand basic verbal information (8 points)
  • e. Cannot communicate: Cannot express or understand verbal information at all (12 points)
8. Reading and Understanding Signs, Symbols, and Words
  • a. Unassisted: Can read and understand written information unaided (0 points)
  • b. Reading aids: Needs an aid or appliance (e.g., magnifying glass, excluding standard glasses) (2 points)
  • c. Complex text help: Needs prompting or assistance to understand complex written information (2 points)
  • d. Basic text help: Needs prompting or assistance to understand basic written information (4 points)
  • e. Cannot read: Cannot read or understand signs, symbols, or words at all (8 points)
9. Engaging With Other People Face-to-Face
  • a. Unassisted: Can engage with others unaided (0 points)
  • b. Prompting: Needs prompting to engage with other people (2 points)
  • c. Social support: Needs social support to engage with other people (4 points)
  • d. Severe distress: Cannot engage with other people due to severe distress or behaviour risks (8 points)
10. Making Decisions About Money
  • a. Unassisted: Can make complex and simple financial decisions unaided (0 points)
  • b. Complex help: Needs prompting or assistance to make complex financial decisions (e.g., managing budgets/bills) (2 points)
  • c. Simple help: Needs prompting or assistance to make simple financial decisions (e.g., buying everyday items) (4 points)
  • d. Cannot manage: Cannot make any financial decisions at all (6 points)

Mobility Component (Activities 11–12)


11. Planning and Following Journeys
  • a. Unassisted: Can plan and follow a route unaided (0 points)
  • b. Distress prompting: Needs prompting to undertake any journey due to overwhelming psychological distress (4 points)
  • c. Cannot plan: Cannot plan the route of a journey (8 points)
  • d. Unfamiliar route: Cannot follow an unfamiliar route without another person, assistance dog, or orientation aid (10 points)
  • e. Severe distress: Cannot undertake any journey at all due to overwhelming psychological distress (10 points)
  • f. Familiar route: Cannot follow even a familiar route without another person, assistance dog, or orientation aid (12 points)
12. Moving Around (Physical Walking Capability)
  • a. Over 200m: Can stand and move more than 200 metres, with or without aids (0 points)
  • b. 50m – 200m: Can stand and move between 50 and 200 metres (4 points)
  • c. 20m – 50m (unaided): Can stand and move between 20 and 50 metres without using an aid (8 points)
  • d. 20m – 50m (with aids): Can stand and move between 20 and 50 metres using an aid or appliance (e.g., walking stick, frame) (10 points)
  • e. 1m – 20m: Can stand and move between 1 metre and 20 metres (12 points)
  • f. Under 1m: Cannot stand or move more than 1 metre, even with an aid (12 points)



PIP ActivityBest Medical EvidenceBest Non-Medical Evidence
Preparing Food / Bathing / DressingOT assessment, hand/joint consultant letters, pain clinic reportsCarer statement detailing physical help given, photos/receipts of home adaptations/aids
Taking Medication / TherapyGP printout, dosage instructions, mental health team monitoring plansSymptom diary showing forgotten doses without prompts, carer logs
Social Engagement & Mental WellbeingCPN notes, psychiatrist letters, therapy attendance recordsStatements from family describing social withdrawal or panic episodes
Planning Journeys (Psychological)Mental health reports, autism/neurodivergence diagnosis summariesTravel diary, incidents where you got lost or suffered overwhelming distress
Moving Around (Physical)Physio gait reports, podiatry notes, MRI/X-ray summariesWalking stick/wheelchair receipts, diary logging severe pain/breathlessness after short distances
 
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It would be great to see a section for help for patients losing or trying for benefits, i get dla that i fought for but got put off esa and denied pip so dla keeping me alive with script.
I will use fightback forjustice when reapplying for pip as they seem to have a high success rate and help alot get higher rate.
Mate in a travesty of justice 10 years ago they gave my mrs(who was on pip at the time) 0 points on both after previously being on 13 points daily living and low mobility and the assessor did a hit job on her that still angers me to this day but I had a break down caused by this and spent months on ssri's for the only time in my life but I did go into barrister mode for 3 months and described her daily issues and the repercussions of doing these tasks with exhaustion and pain flaring and it didn't even get to a tribunal with 16 points awarded for daily living and 16 for mobility too not to be reviewed for 10 years with a grovelling apology and the assessor saying well that could of been the case😡

Makes me angry mate seeing others with the same struggle with this essential benefit.
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Understanding their silly scoring system helps.

Below is the itemised breakdown of descriptor points for all 12 PIP activities.

Remember: for any single activity, you only score the highest individual descriptor that applies to you.

Daily Living Component (Activities 1–10)


1. Preparing Food
  • a. Unassisted: Can prepare and cook a simple meal unaided (0 points)
  • b. Equipment/Aids: Needs an aid or appliance (e.g., perching stool, adapted utensils) (2 points)
  • c. Microwave: Cannot use a conventional cooker, but can use a microwave (2 points)
  • d. Prompting: Needs prompting or encouragement to prepare or cook (2 points)
  • e. Supervision/Help: Needs physical assistance or supervision (4 points)
  • f. Cannot prepare: Cannot prepare and cook food at all (8 points)
2. Taking Nutrition
  • a. Unassisted: Can take nutrition unaided (0 points)
  • b. Minor assistance: Needs an aid, supervision, or physical help cutting up food (2 points)
  • c. Therapeutic source: Needs a therapeutic source (e.g., tube feeding) (2 points)
  • d. Prompting: Needs prompting to eat or drink (4 points)
  • e. Managing therapy: Needs help managing a therapeutic source (6 points)
  • f. Cannot feed self: Cannot convey food or drink to mouth; needs another person (10 points)
3. Managing Therapy or Monitoring a Health Condition
  • a. Unassisted: Manages medication, therapy, or condition unaided (0 points)
  • b. Medication help: Needs an aid, prompting, supervision, or assistance to manage medication or monitor condition (1 point)
  • c. Therapy (≤ 3.5 hrs/wk): Needs help/supervision with therapy taking up to 3.5 hours per week (2 points)
  • d. Therapy (3.5 – 7 hrs/wk): Needs help/supervision with therapy taking between 3.5 and 7 hours per week (4 points)
  • e. Therapy (7 – 14 hrs/wk): Needs help/supervision with therapy taking between 7 and 14 hours per week (6 points)
  • f. Therapy (> 14 hrs/wk): Needs help/supervision with therapy taking over 14 hours per week (8 points)
4. Washing and Bathing
  • a. Unassisted: Can wash and bathe unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., shower seat, grab rails) (2 points)
  • c. Prompting: Needs supervision or prompting (2 points)
  • d. Partial physical help: Needs help to wash hair or body below the waist (2 points)
  • e. Getting in/out: Needs help getting in or out of a bath or shower (3 points)
  • f. Torso help: Needs help to wash body between shoulders and waist (4 points)
  • g. Full assistance: Cannot wash or bathe at all; needs another person to wash entire body (8 points)
5. Managing Toilet Needs or Incontinence
  • a. Unassisted: Manages toilet needs or incontinence unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., raised toilet seat, commode) (2 points)
  • c. Prompting: Needs supervision or prompting (2 points)
  • d. Physical help: Needs assistance to manage toilet needs (4 points)
  • e. Single incontinence: Needs assistance to manage incontinence of either bladder or bowel (6 points)
  • f. Dual incontinence: Needs assistance to manage incontinence of both bladder and bowel (8 points)
6. Dressing and Undressing
  • a. Unassisted: Can dress and undress unaided (0 points)
  • b. Aids: Needs an aid or appliance (e.g., button hooks, long-handled shoe horn) (2 points)
  • c. Prompting: Needs prompting/encouragement to dress, undress, or select appropriate clothes (2 points)
  • d. Lower body: Needs physical help to dress or undress lower body (2 points)
  • e. Upper body: Needs physical help to dress or undress upper body (4 points)
  • f. Cannot dress: Cannot dress or undress at all (8 points)
7. Communicating Verbally
  • a. Unassisted: Can express and understand verbal information unaided (0 points)
  • b. Communication aids: Needs an aid/appliance (e.g., hearing loop) to express or understand basic verbal information (2 points)
  • c. Complex support: Needs support to express or understand complex verbal information (4 points)
  • d. Basic support: Needs support to express or understand basic verbal information (8 points)
  • e. Cannot communicate: Cannot express or understand verbal information at all (12 points)
8. Reading and Understanding Signs, Symbols, and Words
  • a. Unassisted: Can read and understand written information unaided (0 points)
  • b. Reading aids: Needs an aid or appliance (e.g., magnifying glass, excluding standard glasses) (2 points)
  • c. Complex text help: Needs prompting or assistance to understand complex written information (2 points)
  • d. Basic text help: Needs prompting or assistance to understand basic written information (4 points)
  • e. Cannot read: Cannot read or understand signs, symbols, or words at all (8 points)
9. Engaging With Other People Face-to-Face
  • a. Unassisted: Can engage with others unaided (0 points)
  • b. Prompting: Needs prompting to engage with other people (2 points)
  • c. Social support: Needs social support to engage with other people (4 points)
  • d. Severe distress: Cannot engage with other people due to severe distress or behaviour risks (8 points)
10. Making Decisions About Money
  • a. Unassisted: Can make complex and simple financial decisions unaided (0 points)
  • b. Complex help: Needs prompting or assistance to make complex financial decisions (e.g., managing budgets/bills) (2 points)
  • c. Simple help: Needs prompting or assistance to make simple financial decisions (e.g., buying everyday items) (4 points)
  • d. Cannot manage: Cannot make any financial decisions at all (6 points)

Mobility Component (Activities 11–12)


11. Planning and Following Journeys
  • a. Unassisted: Can plan and follow a route unaided (0 points)
  • b. Distress prompting: Needs prompting to undertake any journey due to overwhelming psychological distress (4 points)
  • c. Cannot plan: Cannot plan the route of a journey (8 points)
  • d. Unfamiliar route: Cannot follow an unfamiliar route without another person, assistance dog, or orientation aid (10 points)
  • e. Severe distress: Cannot undertake any journey at all due to overwhelming psychological distress (10 points)
  • f. Familiar route: Cannot follow even a familiar route without another person, assistance dog, or orientation aid (12 points)
12. Moving Around (Physical Walking Capability)
  • a. Over 200m: Can stand and move more than 200 metres, with or without aids (0 points)
  • b. 50m – 200m: Can stand and move between 50 and 200 metres (4 points)
  • c. 20m – 50m (unaided): Can stand and move between 20 and 50 metres without using an aid (8 points)
  • d. 20m – 50m (with aids): Can stand and move between 20 and 50 metres using an aid or appliance (e.g., walking stick, frame) (10 points)
  • e. 1m – 20m: Can stand and move between 1 metre and 20 metres (12 points)
  • f. Under 1m: Cannot stand or move more than 1 metre, even with an aid (12 points)



PIP ActivityBest Medical EvidenceBest Non-Medical Evidence
Preparing Food / Bathing / DressingOT assessment, hand/joint consultant letters, pain clinic reportsCarer statement detailing physical help given, photos/receipts of home adaptations/aids
Taking Medication / TherapyGP printout, dosage instructions, mental health team monitoring plansSymptom diary showing forgotten doses without prompts, carer logs
Social Engagement & Mental WellbeingCPN notes, psychiatrist letters, therapy attendance recordsStatements from family describing social withdrawal or panic episodes
Planning Journeys (Psychological)Mental health reports, autism/neurodivergence diagnosis summariesTravel diary, incidents where you got lost or suffered overwhelming distress
Moving Around (Physical)Physio gait reports, podiatry notes, MRI/X-ray summariesWalking stick/wheelchair receipts, diary logging severe pain/breathlessness after short distances
Also to then further break down what each descriptor means to them and what are the reprecussions of doing these tasks(pain exhaustion),how safely they are carried out and how soon they can be repeated etc as these things have a massive effect on the answer given I found ,for instance someone may be able to make beans on toast but by the time it comes to eating it their hands are exhausted and they cant use the cutlery thus spoiling the meal and causing lasting pain as a repercussion so in effect they made a meal in this instance but the repercussions mean it would go down as they couldn't do it safely ,repeatedly and in an acceptable time .
 
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Mate in a travesty of justice 10 years ago they gave my mrs(who was on pip at the time) 0 points on both after previously being on 13 points daily living and low mobility and the assessor did a hit job on her that still angers me to this day but I had a break down caused by this and spent months on ssri's for the only time in my life but I did go into barrister mode for 3 months and described her daily issues and the repercussions of doing these tasks with exhaustion and pain flaring and it didn't even get to a tribunal with 16 points awarded for daily living and 16 for mobility too not to be reviewed for 10 years with a grovelling apology and the assessor saying well that could of been the case😡

Makes me angry mate seeing others with the same struggle with this essential benefit.
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Also to then further braek down what each descriptor means to them and what are the reprecussions of doing these tasks(pain exhaustion),how safely they are carried out and how soon they can be repeated etc as these things have a massive effect on the answer given I found ,for instance someone may be able to make beans on toast but by the time it comes to eating it their hands are exhausted and they cant use the cutlery thus spoiling the meal and causing lasting pain as a repercussion so in effect they made a meal in this instance but the repercussions mean it would go down as they couldn't do it safely ,repeatedly and in an acceptable time .
Teamwork, right there guys lol

🧍‍♀️🧍‍♂️🧑‍🤝‍🧑👫👭👬🧍‍♀️🧍‍♂️🧑‍🤝‍🧑👫👭👬🧍‍♂️🧍‍♀️👫🧍‍♂️🧍‍♀️🧍‍♀️🧍‍♂️🧑‍🤝‍🧑👫👭👬🧍‍♀️🧍‍♂️🧑‍🤝‍🧑👫👭👬🧍‍♂️🧍‍♀️👫🧍‍♂️🧍‍♀️🧍‍♀️🧍‍♂️🧍‍♂️

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SOH Vocab development

A stoic is a person who stays calm and hides their feelings, especially when bad things happen. They do not cry or complain. The word also points to an old Greek way of thinking.

Chrz Baz
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"We live to learn and we learn to live"
 
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Mate in a travesty of justice 10 years ago they gave my mrs(who was on pip at the time) 0 points on both after previously being on 13 points daily living and low mobility and the assessor did a hit job on her that still angers me to this day but I had a break down caused by this and spent months on ssri's for the only time in my life but I did go into barrister mode for 3 months and described her daily issues and the repercussions of doing these tasks with exhaustion and pain flaring and it didn't even get to a tribunal with 16 points awarded for daily living and 16 for mobility too not to be reviewed for 10 years with a grovelling apology and the assessor saying well that could of been the case😡

Makes me angry mate seeing others with the same struggle with this essential benefit.
New post automatically merged:


Also to then further braek down what each descriptor means to them and what are the reprecussions of doing these tasks(pain exhaustion),how safely they are carried out and how soon they can be repeated etc as these things have a massive effect on the answer given I found ,for instance someone may be able to make beans on toast but by the time it comes to eating it their hands are exhausted and they cant use the cutlery thus spoiling the meal and causing lasting pain as a repercussion so in effect they made a meal in this instance but the repercussions mean it would go down as they couldn't do it safely ,repeatedly and in an acceptable time .
Mate, I live 3,5 km each way from small to medium shop lidl, had no car at the time on std benefits, did not want to drive anyway, told doc, doc notes say, do not drive, this in june 25, cant afford bus, so walk is only option in pain, submitted this on reconsideration as was denied..could not believe my initial app was denied, I mean did they even google where I live, and part of the reasons for denying is that I have a drivers license and there in not reason i cannot drive, but I did not have a car
 
Dr letter was recent, They say at the time of the decision like a 1.5 year back not new symptoms, just gona apply again
you need to base all of the assessments on your worst day. not the particular day in question. my advice? use citizens advice they will do all of your paperwork and make you think of things you didnt even realise you cannot do in comparison to a healthy person. please use them
 
Mate in a travesty of justice 10 years ago they gave my mrs(who was on pip at the time) 0 points on both after previously being on 13 points daily living and low mobility and the assessor did a hit job on her that still angers me to this day but I had a break down caused by this and spent months on ssri's for the only time in my life but I did go into barrister mode for 3 months and described her daily issues and the repercussions of doing these tasks with exhaustion and pain flaring and it didn't even get to a tribunal with 16 points awarded for daily living and 16 for mobility too not to be reviewed for 10 years with a grovelling apology and the assessor saying well that could of been the case😡

Makes me angry mate seeing others with the same struggle with this essential benefit.
I went through alot of stress 2013 and got 0 and before was alot of points , that was esa , uncontrolled epilepsy and anxiety n chronic headaches n still had to look for work. Crazy times. Was going through heavy stress with terminal illness wi parent and this was just as equal stress to be honest.

Theres alot of people that needed it that got threw to the side.
 
BAZZA! Always great to see you hovering around the forum.

Hope you feel at home here mate, small circle but we're a tight bunch!

So sorry to hear the troubles you have gone through regarding government departments, we've had our fair share of battles with them over the course of the last 2 years, only thing I can say is mate is DO NOT let the bastards grind you down! If you feel you're entitled to something based on your health & personal situation then appeal to the high heavens, it is there to support you and simply going without is a complete farce!
 
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